Anyone in this group with continuous collagen, skin and muscle wastage?

Mental Health/Support

Hey,

I have created a group chat for women who are dealing with this problem in the title no matter what the cause is and can't seem to stop wasting away. This includes those that got it from covid.

it's to talk about our experience, share pics, find support & hopefully together we'll figure out what's causing it by sharing labs and identify a common denominator that leads to stopping this from continuing.

Though I can't guarantee that; the more people gather with the same issue, the more chances of finding out the cause.

Please let me know if you'd like to join!

You'll feel less alone dealing with this rare issue too.

I thought I was going crazy and it drove me to madness before I found others.

NB: My wastage didn't start from covid but I've gotten DMs from women that had this issue start with covid, hence why I'm posting here.

Posted Apr 9, 2026, 9:23 PM UTC

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