Symptom free and it feels too good to be true
Hi y'all. I'm 19f and I have suspected MCAS (Have seen an allergist who brought it up as well as a few ER doctors when I was hospitalized for anaphylaxis)
I made a similar post to this about a week ago but thought I'd update and give more details.
My symptoms were: Flushing, Hives, itching skin, itching mouth and throat after eating, brain fog, wheezing, coughing, trouble breathing, diarrhea, and anaphylaxis.
My symptoms appeared out of nowhere on the 8th of march. I had taken Prednisone for about a week and it got rid of my hives but everything else seemed to get worse and I ended up losing 20 lbs due to not being able to eat.
On the night of the 24th I was hospitalized for dehydration and malnutrition. My mom came to see me in the hospital and told me when it was time to come home I should stay with her for a few days instead of go back to my sister's apartment.
(Just for some background last November I moved in with my older sister after having some Urinary issues + suspected endometriosis and wasn't able to care for myself. A month after moving with my sister I started to decline more and more instead of improving, developing things such as Chronic headaches and brain fog)
Anyways, I stayed with my mom on her couch for 3 days, eating only gluten free chicken nuggets and white rice with salt. One day I felt brave and decided to try dairy free + gluten free ben and Jerry's cherry garcia icecream. I expected my throat to get tight and to feel horrible but.. I was fine. And of course I devoured the whole thing.
After that I saw my allergist on the 27th. She told me it sounds like I have MCAS and that she'd test my thyroid and my tryptase. (I'm still waiting for my results)
She also noted that my reactions do not sound food related and that I should be okay.
She prescribed me Xyzal to take nightly as well.
I felt very unsure about that because I noticed every time I'd eat I would feel tightness in my throat and my mouth would itch.
My mom who accompanied me during my appointment tried to tell me I should trust the doctor and have something I'd usually eat. She asked me if I wanted to go to Olive garden because I love Pasta. I was very hesitant but she ended up convincing me to go have lunch with her.
We went to lunch and I was very scared because I didn't have an epipen, but my mom reassured me that she'd be right there if something did happen.
I tried to have a bread stick and waited to see if anything happened. I waited about 5 minutes and it was fine so (somewhat stupidly) I went all in I dipped the breadsticks in Alfredo, had soup, and pasta with meat sauce.
And amazingly enough nothing happened!! nothing at all.
I chatted with my mom over lunch and she brought up the possibility of something in my sister's apartment triggering me. I acknowledged that it could be a possibility but I didn't really know what would be triggering me there and still don't.
But to be safe I decided until I get my results I'd go stay with my dad at his house because I was and still am very scared of my symptoms returning. They were so severe I was afraid for my life to be honest.
I'm currently still at my dad's and have been free of symptoms for two weeks, taking the Xyzal nightly.
But the thing is I keep having this anxiety sneak up on me that my symptoms will randomly return. It is very difficult to try an enjoy my day without symptoms when all I can worry about is if it'll just all come back again.
I'm not eating foods I thought I wouldn't be able to have again. Pasta, meat, fruits, even icecream and pastries. I'm so scared It'll all get taken away again.
I'm unsure what to do in my situation.
Posted Apr 10, 2026, 12:45 AM UTC