r/lupus•
NOLApanam

Thinking everything is lupus …

Diagnosed Users Only

Does anyone else do this? Whenever something hurts, I think it’s lupus. When I get a cold sore, I think it’s lupus. When I’m so tired I can’t move, I think it’s lupus. In early years of diagnosis (17 years ago) I was running off to the rheumie every three or four months. It was almost never lupus.

After a bit, I started letting aches and pains accumulate until the picture got clearer. Now, I see rheumie rarely and get scolded by same for not coming in often enough, or getting bloods drawn on schedule.

Please, no scolding from y’all, I’m carrying enough grief.

Posted Apr 24, 2026, 8:26 PM UTC

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