Hi, I am 20 and have been having chronic migraines since I was about 9 I believe. They got really bad when I was 14 and became extremely painful and frequent around then, even more frequent when I was 16. I'm not looking for medical advice, I've seen dozens of doctors and specialists and am currently seeing a neurologist. Just hoping to identify what's happening in my brain if anyone else gets similar ones. My neurologist doesn't tell me what type I get, if she knows at all.

A good majority of my migraines have absolutely zero trigger and they have aura which my neuro told me is uncommon for women. The only triggers are a lot of noise coming at me at once or if I am sleeping very poorly for a long period, other than that its a surprise. They are EXTREMELY painful in my eyes. Like actually ungodly. I wouldn't even know how to begin describing it. I have strabismus (exotropia) in the left eye and it's believed to be mildly related to that, but the pain does happen in my right eye frequently. The pain in my head usually on the right side and the base of my skull but it's prone to moving around. I'll attach some images and draw where it hurts the most frequently because I don't think I can describe it. I also have TMJ that worsens I think because I clench my jaw when I am in pain.

My vision can black out almost completely sometimes in one eye when I have a really bad migraine, and it doesn't block like my usual aura does (I get zig zags that can like spark sometimes? And they float around). That's the part that scares me a lot and every time I tell a neurologist that or that my headaches wake me up at night they start evaluating my limbs and everything for brain cancer which has happened 1000 times probably at this point and I've had scans, I don't have anything like that. I think I'm just a light sleeper and it hurts really bad.

The thing is some of my migraines are so tame that they can last only 3-4 hours and I honestly call that a win but most of them last whole days and can span multiple days, I've had a few that lasted months. Sometimes I can take my meds and pass out and wake up just in the hangover part but it's so rare. I get them about 7 times a month on preventative medication and about 15 without, and all the rescues I've tried don't even touch the bad ones. I just take zofran and cry. 

I really want to try and understand what is going on in my head, identify it with a word (or several) I guess, so I can describe it better. I havent been able to explain this well to any of my doctors at all. I've googled all the migraine types and it doesn't make a lot of sense to me so I figured I would ask other people who get them I guess. Does ANYONE have anything remotely similar to what im experiencing? Again I don't need any type of medical advice I just want to know if my pain makes sense

Can anyone help identify what type of migraines I am getting?