Ocrevus Zunovo Side Effects?
I've been on the Ocrevus infusion for about 6 years now and it's been great. I haven't had a new lesion since starting it! BUT it took about 4 years to find the right cocktail of steroids and Benadryl to keep me from having the throat and tongue swelling when they increase the speed of infusion. I used to have to stop and do a breathing treatment and keep the speed down.
Ocrevus Care Team just called to talk to be about Zunovo. It would be amazing to be in and out in 1 hr, but I'm curious about the side effects. If I react to increased infusion speed, would injecting in 10 minutes create a similar issue? Does it cause permanent scaring or puckering at injection sites, etc?
I'd love to try it, but do worry about the swelling. It would be so great, not just for times sake, but I've found the infusion has created scar tissue in my veins, which make it really hard for me to get blood drawn.
Would love to hear your experiences!
Posted May 1, 2026, 5:48 PM UTC