r/PostConcussion•
pmanou01

Now I have POTs?

Hi all,

Had a concussion in 2024, post concussion symptom after, severe dysautonomia, couldn't work for 6 months, now we're talking about the potential of pots.

I have no idea how to handle this. I am aggressively unprepared.

I had a previous concussion in '23 that gave me minimal dysautonomia symptoms, so minimal that it wasn't even on my radar, and here I am.

I can't sit outside for more that 30 minutes. I can't work out the way I used to (I'm on the pots protocol workout plan now, and my HIIT/cardio kickboxing/lifting days look like they're over), I can't withstand bright lights and loud noises and I'm a music teacher that has a passion for live music.

I've been patient. I've given myself grace and love and attention and kindness for over a year and I need help. I'm seeing a POTs doctor but I feel so LOST. I'm afraid and confused. Is there anyone that can relate or had advice/ideas?

Posted May 2, 2026, 2:00 PM UTC

723
Loading comments…