Anyone else have endo pain worsen after a miscarriage?
So I have had stage IV endo and had surgery nearly 2 years ago to remove most of it. The only bit they left was on my bowel because it would have involved removing a segment of my bowel that would result in worse side effects than having the endo in there. They still removed some of the bowel endo. I had 8 years of living with endo before I got diagnosed, 10 before surgery. My pelvic anatomy is distorted even after surgery, mostly due to pelvic adhesions.
I am struggling with infertility due to this, I had IVF and got pregnant, then had a missed miscarriage (no bleeding) at 10 weeks. I had a d&c, then I got an infection because it didn't remove all the products of conception, so I was hospitalized for a week and had further surgery and treatment. This predictably caused a massive pain flair up while in hospital but after 2 weeks out of hospital I was feeling fine, then I started getting PMS symptoms including typical endo pains.
This has persisted for 2 weeks without my period arriving, and my bowel in particular is really painful, getting butt stabbing pains and blood in my stool. Nothing I am doing is really helping with the pain, I can usually handle with my CBD/THC prescription and ibuprofen and paracetamol since I had surgery. But it's so much worse since this miscarriage, and my period is just not arriving. I know my hormones make a difference but it's been nearly 2 months, so wtf? Has anything like this happened to anyone else? Anything I can do to help things improve? I've got a doctors appointment booked tomorrow.
Posted May 2, 2026, 2:03 PM UTC