If a specialty were to take us on, which do you think would?
This is a question just for the sake of it. I like thinking about this sometimes, but I doubt it will happen for a while since it seems no specialty wants to take care of our patient population yet.
In my opinion, I feel like immunology, neurology, or maybe rheumatology would be best equipped to treat ME/CFS. Immunology is kind of obvious with all of the immunological problems. Neurology would make sense because this is considered to be a neuro-immune disease. If neuroinflammation, becomes better proved, then it would definitely make most sense for neurology to treat us. I think rheumatology would only make sense if there is more evidence for auto antibodies.
I hear of a lot of people getting help from internists, but I don’t really understand how they differ from general practitioners and doctors. And it’s not like we’re the only disease that affects multiple systems. Just look at diabetes. If someone can explain to me what distinguishes internists, that could be interesting. I also think that there is not as many internists as other specialty doctors, so that’s why it would not be my first choice.
I just get so mad so often that we are relegated to healthcare professionals that are interested in us instead of having a dedicated specialty with lots of doctors that can take care of us. Many people have no doctors in their area. Some have one that specializes in it, but also has many other problems or just might not be up-to-date. And then there are some lucky ones. But that’s it. It’s so messed up that we have no dedicated specialty for our disease and are just left to hope that somebody was interested enough to pick up our case. That’s why I like daydreaming about this question, even if it is unlikely to happen anytime soon.
Posted May 6, 2026, 11:12 PM UTC