How to switch your mindset??

Vent/Rant - Advice Wanted/Ambivalent

I have a sister disease to MS - Neuromyletis optica spectrum disorder! Im coming up on a year of diagnosis in July but man does the acceptance part really come in waves! Some weeks are better than others🥲😅

I guess my mind says resting with pain is valid but fatigue is something I should push through- that im not doing well enough and basically have to defend myself against myself- HOW do you switch that mindset?

The fatigue is KICKING my as* and sooooo hard, my body also just flares up so many other symptoms like my leg collapsing and not working or my vision being worse and nausea, etc . the more tired/fatigued I am and im just - feeling SO guilty or like at fault? Feeling like im letting people down and my outward love language to others is acts of service and I feel like im not able to do it as much as I was able to and feeling like im resting TOO much when im not even resting actively as much as i feel like i could?

ugh the imposter syndrome is harsh and I just feel like i did something wrong everytime I have an ounce of energy that disappears when i do a task?

its almost like this is a second wind of imposter syndrome and im doing my best but whooo, i know others deal with this a lot but even though im talking about it in therapy i feel like ive received some really helpful advice from those who have gone through it themselves! 🥲

Posted May 6, 2026, 11:15 PM UTC

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