Does anyone have HHT?

My son had a brain bleed at age 8. A vessel in his frontal lobe burst on his right side. The left same had the same malformation as the right and would burst in the future if not fixed. So he now has a coil on each side of his brain. It’s a few years later and he is now being tested for HHT. It’s going to take up to 9 months for the results. He doesn’t have nose bleeds so that’s a positive sign (I think).
I know you can’t diagnose him but I was just curious about how it affects people who have it.