InFed vs Venofer and POTS

Question

Hi everyone, I was finally approved for iron infusions after a year of research, seeing multiple docs, asking for certain labs, a second opinion, and finally seeing a hematologist and near fainting in her office. (For reference my Ferritin is 11.9) I know there’s a lot of posts of different infusion types but I’m wondering if there’s anyone out there like me. I have major histamine sensitivity, POTS, and Dermatomyositis and the office just called to schedule me for InFed.

I’d love to get this infusion done in one fell swoop instead of having to take off work regularly for multiple infusions, but not only am I sensitive to almost everything… The black box warning and Reddit reviews I’ve seen are *not* comforting. My system is so sensitive and I react to a lot of stuff… trying to decide if I should continue doing the mental/emotional labor to now try to fight for Venofer or just an infusion that’s not InFed.

Any other super sensitive patients out there have dysautonomia or MCAS and do okay on it? Thanks in advance! (Also feel free to tell me how much better you feel now that you’ve had an infusion, in general. I need hope!)

Posted May 8, 2026, 3:50 PM UTC

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