NF and severity?

Question/Advice

I know each person has different manifestations. My best friend I met right out of hs ( ironically met at our workplace) has ZERO cutaneous fibromas like not even one. i don’t know even think she has any of those purples spots / internal fibromas things.

She did have a brain tumor removed at 16 years old due to seizures and she’s legally blind. I believe it’s probably nearly impossible for the tumor grow back. She has 2 kids and hasn’t passed on NF yet. They’re 2 and 9 months and she’s pregnant again! Due at the end of the year The had a couple of growths on her thyroid but I’m not sure whether they were NF related or not? She never said

All that being said, she isn’t on this platform but has questions. Hopefully I’m able to address them and get answers from you guys. She recently moved states and doesn’t have an NF provider there .

-Do I still have the same cancer risks as anyone with NF since mine is mild ?

- Will I ever grow visible tumors since I already don’t have any?

- is it likely il never pass on NF because I haven’t yet?/if I do will my children have it mildly like myself?

-since I’ve been mild for so long with pretty much everything , am I in the clear? Hopefully someone can answer these and relate ?

Posted May 10, 2026, 2:08 PM UTC

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