Ketotifen - worth pushing through?

Doc put me on 1mg of ketotifen AM and PM. I took one dose in the evening which made me pretty drowsy but I didn't mind as I just went straight to sleep. Still, the next day I woke up super groggy and spaced out which lasted all day. I felt like I was in a total fog all day, clumsy, forgetful etc.

I've read it really helps a lot of people but after years of trialing different meds I am so tired with having to push through shitty side effects. I know everyone is different but I am looking for experiences where pushing through resulted in something positive and if so, which symptoms did it help you with?

I am on a very restrictive low histamine diet already and although my MCAS symptoms have evolved over time, the worst ones are currently throat tightening which ranges from mildly to extremely uncomfortable, racing non stop thoughts and anxiety, brain fog, tinnitus, facial flushing, itching, POTS (tachycardia, palpatations), reactive hypoglycemia, and presyncope when exposed to bright lights. Was really hoping the ketotifen would help with these so hoping others have had positive experiences with it.

Posted May 10, 2026, 10:11 PM UTC · edited

13
Loading comments…