Does anybody have experience with Alopecia Areata turning into universalis or totalis???
Hello! I’m 20F and have been dealing with alopecia areata since I was around the age of 8. It started with the typically patchiness and then eventually I lost my full scalp of hair. However, throughout the years I’ve only ever lost the hair on my scalp. I’ve kept my eyebrows, eyelashes, leg hair, armpit hair, etc. but this week I’ve noticed a small bald spot appearing in the tail of my right eyebrow. It’s very smooth, but also a little painful. Almost as if there’s a pimple there or the hair was tweezed. In over 10 years of experiencing alopecia areata, I’ve NEVER felt pain from hair loss. It’s not unbearable but definitely sore to the touch. It’s smooth and I don’t see any signs of hair growth in that area. I do have a history of getting acne in my eyebrow area but I’ve never noticed signs of hair loss because of it.
I just didn’t think it was possible that in ALL my time of having a certain type of alopecia, it could change to a different one. Don’t get me wrong, I knew it was possible just not after years. Now I’m extremely nervous about potentially having to adjust to a new change. My whole thing was “yeah I’m bald, but I have my eyebrows.” And now… I just don’t know what to think anymore.
Posted May 11, 2026, 5:33 AM UTC