Dr Ahmed Clinic and MEND Collective Concerns

This is a bit long and what I want to know is if anyone else out there has also had this experience.

So, where do I begin, at the beginning I suppose! Like many others I saw Dr Ahmed (or Dr A as he is also known) on Instagram as he specialises in fibro/CFS/POTS/MCAS. I checked out his Dr credentials, which all seemed to be ok and as he was promoting a new group called the MEND collective I joining in November last year. I hoped that the group would be full of like minded people looking to make our lives just a little bit easier with support and programmes built around out chronic illnesses.

In addition to the group Dr A also privately practices. I saw that there were some dates available for one of his clinics and I booked in with him atthe end of Frbruary this year. Ii thought right I am going to see him as trying to discuss things with my GP just keeps resulting in being told its just your Fibromyalgia and CFS and that they can do nothing else for me. I paid the money and saw Dr A. It was amazing and it was like I was seen and heard for the first time. He suspected MCAS and so I got started on the medicaiton and things began to improve quite dramtically. Now after 3 weeks of sending in consultation forms and having a reply in 24 hours things began to go downhill. Not with my health, but with contact from Dr A. I was sending in my consultation form and not hearing anything back. You receive feedback and your medication is reviewed. For 3 weeks I heard absoltuely nothing back, despite submitting my forms and emailing regularly asking for feedback and asking if there were any issues.

In the end I reached out to one of the coaches on the MEND collective to see if they were able to prompt him. I was also becoming more concerned as there had been no posts on the group for some time from Dr A, coaches had dropped off to just 1 or 2 every week instead of 3 or 4 a day and others on the platform were clearly and rightly becoming worried. I did finally get an email with an apology and he said we should meet online to discuss my review and also the communication issues.

So, this went well. We reviewed my medication, I explained how much better I was feeling and like an idiot I glossed over the issues because he appeared to really care about my health. He said that he would endeavour to review my form with feedback the following day and that if he was slow in replying that I should email again.

I got my prescription from him and unfortunately 1 item wasnt available. So I emailed him, then I emailed again, and again. This might seem excessive but without the medicaiton I have become sick through withdrawal and also my symptoms have returned. 6 days and nothing. Once again I am in limbo and my anxiety I am being taken for a fool returns.

Has anyone else seen Dr A. Have you had similar experiences lately. What are your thoughts? I have messaged another patient who said he did go quiet on her but she would reach out to one of the coaches on the Mend Collective and would then reply, and she has now ended her programme with him and is happy with it.

I can see he is promoting his new supplement on Instagram and I just feel he is more about making money now than he is about really helping people. If you got to the end, thank you for reading and if you didn't thank you for trying lol