I have Duchenne Muscular Dystrophy and honestly don’t know how to approach life anymore

Advice Needed: Career

I have Duchenne Muscular Dystrophy (DMD). It’s a progressive muscle disease, so instead of getting physically stronger with time, my body slowly gets weaker.

Lately I’ve been thinking a lot about my future and wanted honest opinions from people outside my own head.

My biggest fear is becoming completely dependent on my family financially and physically. I hate the idea of living my whole life on someone else’s support and feeling like a burden.

I tried learning skills multiple times because I wanted to build an online income and become independent somehow. I started things like website development and other online skills, but every time I lose consistency, get distracted, or fall back into the same routine again.

Most of my days look almost identical:

wake up, spend hours on my phone, games, anime, WhatsApp, random scrolling, sleep, repeat.

And honestly, sometimes it feels like time is moving while I’m standing still.

The hard part is that people usually give simple advice like “work hard” or “stay positive,” but it’s difficult to explain what it feels like trying to build a future while knowing your condition is progressive.

So I want real answers from people:

If you were in my situation, what would you honestly do?

Would you still chase goals seriously?

Would you focus on enjoying life more?

Would you keep trying to build skills and income online?

How would you deal mentally with the fear of becoming dependent on others?

I’m not looking for pity or fake motivation. I just want honest perspectives.

Posted Jun 3, 2026, 1:23 PM UTC

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