r/ALS•
mystic_guardian_934

Dad just got diagnosed

Just Venting

For context, he is 80 and started having difficulty walking in around September of last year. He had surgery for something unrelated in June, and had some complications with the anesthesia. He started having a lot of muscle spasms in his legs after that and we all assumed it had something to do with what happened with the surgery.

After 6 months of tests with nothing definitive, his neuro finally told him that he was starting to think it was ALS. He wanted him to go see another more senior neuro for a 2nd opinion. He saw that doctor twice and today he ran an EMG and gave him the bad news.

He currently is still able to walk using a walker and doesn't have any other noticeable symptoms as of now. He's an Air Force vet from the Vietnam war era (didn't deploy there). I know there is apparently a lot of assistance he can get from the VA. I just don't really know where we go from there. He is in Texas and I am a few states away. My sister still lives nearby.

We've been fearing this since the first doctor let us know what he thought, but now it's starting to sink in and it really sucks. I tell myself that he's lucky that he lived 80 years in relatively good health. But it still doesn't seem fair.

Sorry, I just wanted to share with those who understand what we're going through. Send prayer, positive thoughts, good vibes, etc for our family as we go through this tough time.

Thanks.

*Edit to add that I just realized he got diagnosed on Lou Gehrig Day. Dark irony.

Posted Jun 3, 2026, 11:46 PM UTC

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