I went into anaphylaxis today after my iron infusion

I’m exhausted, so I’ll keep this short ish but I’ve been going to get Venofer for 4 weeks, 1x weekly.Today was my last. Each week I got premedication, iron, then observation.

First week: restless legs, bad sleep- attributed to pre med/steroids. Nausea in between infusions, constant menstrual bleeding, stomach issues, emotional upset and downs. Energy slightly improved. Pain overall worse!

Second week: same deal, a little more intense. Burning skin and hot flashes. Pica goes away.

Third week: same as above. Way more intense, throat is itchy, swollen, tight chest, trouble expanding rib cage. I’m clammy, told nurses— I take Benadryl at home. They give me post meds as well, I’m mostly fine by the next day.

Fourth week: all of the above and worse. Given pre meds plus pre Benadryl. Post meds don’t help either. Receive EpiPen bc I can’t breathe properly, voice change with strain. Brought to hospital via ambulance to be observed for 4 hours and prescribed EpiPen.

I’m sad. And tired. This has been going on for so long, we don’t even know why I’m so low (ferritin was at 2), though I suspect it’s got something to do with menstrual bleeding fir 4 years straight and possible endo.

I had bariatric surgery so I also don’t absorb anything well but dr doesn’t want me to do this again. Just sad and venting. My pain tolerance is really high so I didn’t even feel the EpiPen going in and I almost can’t even tell if my throat is swollen still or just tender and inflamed. Ugh.