People just don’t get it.

A lot of times I question whether I made a bad choice to have children naturally? I did pass it on 2x which sucks and is sad. However I KNEW. My chances. I give my kids the best chance at life. I don’t treat them any different if they were to not have NF. Something about IVF didn’t sit right with me when we were family planning. Of course we want a 3rd and final and we will be going the ivf route. I just wish people would make me feel terrible for passing this on.

How could you have children knowingly you could pass this curse on?

How could you be so selfish?

How could you ever forgive yourself?

So many questions asked in NF communities and in public in general when I’m educating people on NF. I already feel grief and pain suffering from NF particularly after pregancies with fibromas which I’m trying to learn to accept. I already feel guilt and worry that my children will resent me, I don’t need mean comments said on why I chose this. Honestly though pregancy general is a crap shoot. There’s lots of spontaneous mutations Of NF and lots of fluke conditions anyway. It’s not like I’m blindly raising my children. I feel blessed to know what to be aware of and how to take care of them. Which specialists to see etc.

Anyway sorry. Just a moment feeling sad and scared of resentment. I do however have hope for a future with NF. I have hope that my children will have so much greater outcomes. My son already does with the way he is being treated for his pseudoarthrosis.