My neck has been bothering me on and off for years. After my hand surgery in January it started bothering me and clicking/popping/ clunking/ feeling like I MUST pop it endlessly.i have hEDS and have always had issues with tight traps and random shivers (when not cold) that start at the base of my skull. I get occipital headaches and I've literally had my neck pop and then an hour later the pain SWITCHED sides within an hour. Bracing seems to help a little but I can't get a spine doctor to listen and the one I saw said everything was normal. I disagree and would love your thoughts.

The spine doctor said AAI “usually presents differently” than me but he was describing from my understanding the type seen from accidents not type one. [https://pmc.ncbi.nlm.nih.gov/articles/PMC8121728/](https://pmc.ncbi.nlm.nih.gov/articles/PMC8121728/)

My DPT and I both think based on X-ray and Passive Physiological Intervertebral Movement (PPIVM) test Combined with elements of: Passive Accessory Intervertebral Movement (PAIVM) testing(so he could feel my vertebra) that it's Fielding type one AAI a type of CCI only seen in people with connective tissue disorders. I randomly came across a 3D scan of someone with something similar that had helped me describe more accurately what I was feeling because it was hard to pinpoint where the pain was coming from.

My mom also has issues with her neck. We both will get a pop and burn then go days where we can barely move our neck. Now mine is more mild but constant.

I also have POTS, Sjogrens, SFN, Crohns, and a few other things. I have terrible brain fog and I'm exhausted. It gets worse when I turn my head a certain way. I get dizzy or get darkness around the edges of my vision. I have tinnitus frequently and have started getting worsening nausea. Last summer my vision was going blurry all the time. My arms and hands go numb easily particularly if my head and shoulders are in a certain position ( not the same as my SFN).

I just don't want it to get worse if this is what it is. I know if they catch it early enough proper bracing could help but I only have the foam one I got on Amazon.

I am so tired of doctors making me feel crazy. Let me know your thoughts on these x-rays. Do you see the gaps between the dens masses and odontoid changing as I move? Anything else? I think I'm gonna have to go to LA if Dr. SAperstein can't help when I see him in July. 

X rays and Spine Drs wrong