New to the fam

Seeking Support

Im 25 F autistic. I have Posterior Tibial Tendon Dysfunction (diagnosed only about a month ago) which causes me to need special shoes, AFO braces and custom insoles when im standing. I never went to the doctor as a kid due to medical neglect so i have to figure everything out now as an adult. My Therapist suggested i get tested for ehlers danlos. I just got off from my evaluation and she believes i have it but shes sending me to a geneticist to figure out what kind it is. She also wants me to get tested for scoliosis as she said my shoulders look uneven , etc. Its maybe a weird thing to say but im actually so relieved to finally be getting tested and maybe ill finally get help. Ive been dealing with brain fog, feet leg upper back neck and head pain all my life. i get dizzy when i stand up and i get sick so easily. Hoping this will be a positive step moving forward

Posted Jun 8, 2026, 4:31 PM UTC

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