Hey everyone! I had a laparoscopy and “endometriosis excision” in November 2025. I have almost every symptom of endo, which led me to get the surgery. My surgeon found powder burn lesions on my left ovarian fascia, and only removed/tested 1 of them. The pathology came back negative. They told me I don’t have endometriosis, just dysmenorrhea. I was devastated. They told me it doesn’t matter because both are treated the same anyways. It was so hard to not have a diagnosis.

I have a second surgery scheduled with an excision specialist. Everything is pointing towards this being endometriosis. I know I’m doing the right thing, but I’m so scared of the same thing happening. It’s not rational, but I’m afraid I’m going to wake up from surgery being told there is nothing wrong with me. This fear has nothing to do with the specialist I’m seeing because she has amazing reviews. The medical gaslighting has gotten to me, which is making me so nervous about the results of my next surgery.

Those of you have been officially diagnosed through surgery or have experience with this, please let me know your thoughts. Thank you! 🖤

Symptoms: heavy bleeding with blood clots, irregular periods, flu symptoms in week leading up to period, fatigue, brain fog, pelvic pain, abdominal pain, lower back pain, shoulder/neck pain, shooting pain down legs, pelvic inflammation, chest pain, shortness of breath, dizziness, constant urination, constipation, lightening butt/vagina, nausea.

Powder burn lesions found, pathology negative for endometriosis