Nicu, 28 weeker, NEC, PVS - looking for positive stories
Hi, FTM here and looking for some positive outcomes. Had a very normal pregnancy until baby girl decided to come at 28 weeks. On day 2 she got NEC and underwent surgery. Just when we started calming down and enjoying her arrival - she had another episode of NEC after 12 days which needed surgery again.
Her first echo didn’t show any issues whereas the recent one showed pulmonary value stenosis.
We are still in the thick of it and it has been so hard to go through all this. at this point kinda want everything to just stop.
please tell me of long term outcome of this are hopeful.
Posted Jun 11, 2026, 9:28 PM UTC
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