I’ve been dealing with hair loss for several years and I’m honestly feeling defeated.

I’ve seen a dermatologist, endocrinologist, and rheumatologist. I had a positive ANA, but after additional testing they ultimately concluded that I don’t have an autoimmune disease. I’m currently on treatment, 1/4 tablet of minoxidil and 50 mg of spiro, I recently upped minoxidil to half a tablet, I was on that dosage before and it didn’t help and I haven’t seen the improvement I was hoping for.  
    
My ferritin was relatively low as well as vitamin d and I’ve been making efforts to supplement, but haven’t had recent blood work to confirm if the numbers have changed. No improvement is hair shedding, hair texture, density etc.

Don’t get me wrong, the thinning itself is devastating. My temples and the areas above my ears are pretty bare now, and my parts seem to be getting wider as time goes on. That alone has been incredibly difficult to cope with.

What has been bothering me the most lately, though, is the texture change. Before all of this, my hair was relatively low maintenance. It wasn’t perfect, but it was easy to work with and generally looked neat without much effort.

Now my hair feels completely different. It looks frizzy, wispy, stringy, and almost broken. There are hairs of different lengths and diameters throughout my scalp, and when I pull out a section of hair it looks uneven instead of smooth and uniform.

I know it’s difficult to determine miniaturization from photos alone, but this texture is present throughout my entire scalp. I did use a little Boldify hair powder in my part because it was looking sparse, but the texture I’m talking about is there regardless.

My hair has taken on an unkempt appearance no matter what I do, which makes it harder to work with the hair I still have. Sometimes it feels like the texture change has been almost as emotionally difficult as the thinning because it affects how my hair looks every single day.

Has anyone else experienced this? Did your hair become dry, fuzzy, wiry, or “cotton candy” like as your hair loss progressed? Did treatment ever improve the texture, or did it mainly help with density and shedding?

I’d really appreciate hearing from anyone who has gone through something similar. Open to hearing about treatments outside of minoxidil or spiro.

Hair texture change with constant shedding and loss