How do people do it??

Venting

This is a vent, so I apologize in advance but I don’t know how people do this. All I did was two activities with my daughter and now I am in such a bad flare that my throat is inflamed, I have the worse migraine, my muscles and even my skin hurts. Nausea makes it so I barely eat and I’m terrified of the aftermath when I do. I feel like I’m on the brink of fainting constantly. Everything hurts and I don’t even know what to do for pain management.

I just grieve everyday that I can’t even manage to do more than two things in a day without literally feel like I’m dying right after. It’s really hard when no one around you truly gets how you feel. They don’t even know half of the pain I go through all damn day. I have mixed connective tissue disease and probably a whole host of things that aren’t diagnosed yet.

I just wish I was around more people who understand.

Posted Jun 13, 2026, 11:43 PM UTC

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