My doctor refused to get to me tested for Fabry

I’ve tried so many things and no answer, then I found Fabry and so many of the symptoms align.. it’s the closest to an answer I’ve found and yet my doctor refuses. Maybe I’m not 100% sure it’s it, maybe it’s not at all BUT at least test me?! We will never know until I get tested. We have no other answer or options either so why can’t they at least try. I’m so fed up with doctors and rare diseases. Yes it’s rare but if there is even the tiniest of chances why not take?

It’s so unbearable to live like this. It’s everyday, it’s constant. I can’t keep living like this and I sure as hell won’t be able to make a living. Having a job is just out of the question. It’s getting worse and worse since the past 2 years.

What am I supposed to do to convince my doctor?