living with avms sharing experiences and coping strategies

hey everyone, i wanted to create a space for us to share our experiences living with arteriovenous malformations. i was diagnosed a couple of years ago, and it's been a rollercoaster since then. dealing with the physical and emotional impacts can feel isolating at times.nni've found that connecting with others who understand what we're going through makes a big difference. whether it's sharing tips on how to manage symptoms, discussing treatment options, or just venting about the struggles, i think we can all benefit from each other's stories. so feel free to share your journey, how you cope, and any advice you might have. looking forward to hearing from all of you!