What are your treatments?
Hi everyone, I got diagnosed with POTS about 3 months ago and my doctors suspect I have some other related autonomic dysfunction as well as a mild Ehlers-danlos. I also have some autoimmune diseases that are only helped with a modified diet but it means when I get sick with a cold or flu or something I’m basically half dead for weeks on end. When I’m not sick with anything I still have debilitating chronic fatigue and chronic pain. I’ve had to quit my job and drop out of uni but I’m hoping to restart studies mostly online soon. I don’t see any prospect for anything resembling the life, career and relationships I long for because of all this. It’s all depressing beyond words but that goes without saying and it is at least a bit of a comfort to know you guys all know how it is. At least we’re all in it together lol
Im mainly making this post just to see and compare what treatments people are on so I can assess any options I don’t know about. My doctors put me on bisoprolol which has made a massive difference to by BP and heart rate, but I don’t feel any better at all, my body just runs better. I’m meant to be taking like 15+ salt tablets a day to retain water but I don’t notice much difference. The only other real ‘treatment’ my doctors gave me when I was at an impatient stay in hospital to try to get all this figured out was to read a big book on Buddhist meditation and to meditate as much as possible. Not exactly assuring but whatever. I’ve tried getting back into the gym a couple of times a week in hopes some fitness could kickstart my strength and energy but it just leaves me feeling on the brink of death for the rest of the week, even more dysfunctional. Nothing seems to work at all and there doesn’t seem like there’s any options left. So hearing from you all is all I can think of left lol. Thanks in advance
Posted Jun 25, 2026, 6:49 AM UTC