Mecfs has made my autism harder to manage

Vent/Rant

I can't handle anything anymore. Things I used to be able to handle cause me so much more distress. I think it's partially because it's so much harder to handle emotions and things that cause distress w/ autism when you're so exhausted

My sensory issues are a lot worse than before. Everything's more overstimulating and more distressing. Not to mention how overstimulating being constantly uncomfortable is. I'm constantly uncomfortable and the mental load of constantly needing to think about every little action you make because you have no energy adds to it.

Before mecfs I could generally handle things that distressed me because of autism, I didn't get many meltdowns. But now everything leaves me on the brink of a meltdown, if not a full blown meltdown. Just had a meltdown over a slight change in routine that wouldn't have caused a meltdown before I developed mecfs. It was already hard to calm myself down after becoming distressed, but trying to regulate your emotions when your always exhausted is awful. It makes negative emotions so much bigger and much less easy to handle. I feel like a cranky toddler

Meltdowns suck even more now because they used so much more energy. I try and hold my meltdowns in until evenings if I can handle it (which isn't very often) because if I have a meltdown during the day I can't keep my eyes open for the rest of the day and I'm just so much more exhausted after. It's harder to recover from

Then there's the social side of things. I already struggled but thanks to the isolation of this disease I've pretty much lost the few social skills I had. I can't even think about messaging someone without distress. I never know how to reply and I can't mask the way I used to.

Generally mecfs has made my autism harder to manage. I hate mecfs for a variety of reasons, one of which being how it impacts my other conditions like this.

Are you also autistic? Do you struggle more now?

Posted Jun 26, 2026, 9:01 PM UTC

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