Waiting on genetic testing
I grew up with specific issues that now that I think on could have been caused by EDS, as the pretext states I am currently waiting on my official diagnosis. Should I pursue physical therapy before my diagnosis or wait to be set up by the rheumatologist? I can see how it would be hard to get the help I need without the diagnosis. I’m already at a point where my left shoulder has dislocated about 7 times, 6 of which I was able to reset it myself, it no longer pops when I try to pop it and it’s very tightly held in place, presumably by scar tissue ?
Posted Jun 30, 2026, 2:38 AM UTC
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