When to stop raising the dose?

I have ME/CFS, I am currently on 3ml liquid suspension. I started at 0.5 at the end of April. When I started I was severe and could hardly stand for more than a few minutes. Around 2ml and 3ml dose I would consider myself moderate, I have more energy, but use a wheelchair for longer outings, pace, and limit my activity a lot.

I don’t feel satisfied with my progress, but I am very grateful my baseline has improved. My dr told me I can increase up to 6ml or until I feel effects. So my question is, should I continue to increase the dose in the hope that I will improve more, or are the potential side effects not worth it? Should I just take the improvement I have now?

Or is this the false recovery I hear about happening in the beginning of LDN treatment, and I may regress in the coming months?

Posted Jun 30, 2026, 2:39 AM UTC

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