Debating on if it’s worth getting re-tested. The rheumatologist who tested me previously told me that I didn’t have EDS and that I had fibromyalgia and some hyper mobility. He said that since I’ve never experienced a confirmed dislocation nor have a family history he didn’t believe I had it. 

I have seen a chiropractor before who mentioned literally every time I saw him something seemed out of place. It was usually a vertebrae, rib, or my hip. Unsure if those were considered subluxations? Because I could still move. Those areas just hurt. The chiropractor mentioned it was weird given those were usually only issues seen in people who do sports and often asked if I did anything to cause it. Usually it was nothing. Whenever it was something it would be like.. cleaning a litter box or showering. Really normal stuff. 

I met with a surgeon recently to fix my shoulder ( basically the muscle is torn and has been for 10 years physical therapy and meds have done nothing) who was asking me how I got the the tear, I said I just I just woke up with it and it hasn’t gone away. He asked if I have any connective tissue disorders, I said no just some hyper mobility. He did the classic tests ( hyper exstending the elbows and knees, bending pinky backwards, bending thumb to wrist literally the same stuff The rheumatologist did ) and said I definitely have something wrong with my connective tissue. He put Ehlers danlos on the paperwork. I am not diagnosed so I’m unsure if that’s even legal?? He wrote in his patient notes saying he was pretty sure I had Ehlers danlos or something similar and that he didn’t want to operate on me since his theory is that the issue is just my muscle torn from faulty tissue and that surgery wouldn’t fix that.   
I’m debating if maybe I should look around for other doctors who could retest me for EDS? Or if that’s even worth it. I don’t want to waste their time if I don’t have anything wrong. 

How many times did you need to get tested?