r/mecfsSD•3 mo. ago

Miscellaneous ME/CFS News & Events 7/3/2026

Cort Johnson Health Rising Blog: Real progress will require Congressional action and NIH Funding, including $50M to implement the ME/CFS Research Roadmap. https://www.healthrising.org/blog/2026/06/05/elephant-nih-long-covid-mecfs-pots/

NCNED team at Griffith University, led by Professor Sonya Marshall-Gradisnik, ME/CFS research: evidence suggesting the brain's waste clearance system may not work as efficiently in ME/CFS, linked to worse sleep problems and concentration difficulties. https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2026.1875420/full

PAIN Journal: Melatonin modestly improves sleep in chronic pain & may have a small, uncertain, non–dose-dependent effect on chronic musculoskeletal pain, but no clinically meaningful benefit for postop pain. https://www.sci.news/medicine/melatonin-chronic-musculoskeletal-pain-14885.html

OMF & Renegade Research live session: July 15 at 5pm ET on crashes & PEM/PESE/PENE in ME/CFS. Focus includes defining crashes vs PEM, triggers, & how to measure post-exertional symptom worsening in trials. https://us02web.zoom.us/webinar/register/WN_OjdQhPksQ0Snm49JhZlgfg

OMF CTN Lite Patient & Caregiver Survey Preliminary Results: https://www.youtube.com/watch?v=hI-zrkpCRAU&feature=youtu.be

EU has awarded €7.5M to the DISCOVER-ME consortium for ME/CFS research: Led by Prof Eva Untersmayr, project will phenotype 2,000 patients & run multi-omics on >900 samples across European biobanks, with patient input via u/EUROMEALL. https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/projects-details/43108390/101287766/HORIZON

ME/CFS Newsletters:

Posted Jul 3, 2026, 6:25 PM UTC