UC treatment plan/ next steps after diagnosis with NHS

Question

Hi this is my first reddit post ever so I hope this is meeting all the guidelines etc! :)

I'm in the UK. I've just received a diagnosis for UC a couple days ago from the hospital after getting a colonoscopy. I've been having symptoms for a while that I believed to just be a bad IBS flare up but my GP referred me for the colonoscopy after finding blood in a stool test and the nurse who did the colonoscopy diagnosed me with UC and sent off a bunch of biopsies, bloods and another stool sample to test calprotectin levels. She also started me on medication (mesalazine). However this all happened very quickly and I haven't been given much info on next steps since leaving the hospital. Does anyone have experience with NHS treatment for UC? This is NHS Scotland specifically. Or does it differ for each health board? Like what happens when I get my test results back? Do I see a consultant or a specialist or something? I'm assuming I'll have to take the medication long-term but will I have regular appointments to monitor my UC? Will I have to have colonoscopies regularly? And do I understand correctly that this is a progressive disease? Reading through this sub I feel lucky that my symptoms seem relatively mild and as annoying as they are they haven't majorly been impacting my life so far, should I expect this to get worse?

Sorry these are a lot of questions, it's just that I've been given this diagnosis and haven't really been told at all what it means for my life going forward lol so any UK people who are receiving NHS treatment, I'd love to hear your experience/ advice. Thank you!

Posted Jul 4, 2026, 6:40 PM UTC

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