What are your “weird” symptoms

I’m 35 and still learning about my diagnosis’s. No thanks at all to any of my doctors but thanks to social media and my own Google searches. Weird things my body does that I suddenly see a video of and realize “OH MY GOD THATS WHY THAT HAPPENS!?” I’ve complied a small list of weird things I have always dealt with that I’m curious if they are common in others with EDS.

•Horribly painful gas. I mean the pain is so intense I cannot stand or sit straight and I ended up in the ER multiple times as a child before I was able to identify “this is gas and will go away”. The weird part is the pain will cease IMMEDIATELY if I lay down. If I don’t pass it and try to stand up again, pain comes right back. But as long as I am horizontal, I’m fine. It’s so weird and my parents definitely thought I was lying about how intense the pain was if I’m suddenly fine when laying down.

•Random, sharp pains in a very small isolated area. I will occasionally get the feeling like someone is shoving a needle into my flesh. The pain is isolated to the one tiny, pin sized area. Happens pretty much anywhere with no pattern. Could be my head, arm, stomach, leg, armpit. I always imagine one singular nerve is just having a tantrum for a minute.

•sometimes my hair hurts. I know it has no nerves and is “dead”. It still hurts.

•I cannot sleep stretched out. I sleep on my side, knees curled up (with a pillow between my legs), one hand under my pillow (even though I use one of those absurd cervical pillows that has a special slot for my hand. It still goes under the pillow. My other arm is curled against my chest hand in a fist under my chin. I wake up so damn stiff every morning, I know my sleeping position is to blame but I cannot sleep any other way. Even though I roll, move and change positions 800 times trying to fall asleep. I always wake up curled up that exact same way.

My other symptoms are things I know are attributed to EDS or Fibro or IBS or whatever other diagnosis but these are the ones I haven’t really seen people talk about and I’m not entirely convinced I’m not just crazy.