It took me 26 years to get diagnosed.

I just got diagnosed with HEDS. My rheumatologist took one look at my mobility and did the evaluation and I tested a near 10/10 on the hEDS test. When I was younger I used to be incredibly flexible but lost it over time even with stretching all because I'm protecting my joints. My mom got evaluated and has it, and my grandmother has EDS of blood vessels and it's primarily affected her gums.

Apparently extreme flexibility runs in my family and my great great grandmother actually was a contortionist back in the late 1800s.