Seeking some opinions...

Caregiver

Posted about 2 months ago that my mom was diagnosed with T1 NMIBC large tumor high grade. She had an initial TURBT with complications that ended her up in the ER with a severe UTI. The original Dr. Suggested that bladder removal was her only option. She requested a second opinion. He sent the samples to Sloan Kettering and was told to come back in two weeks. In that time we went to Roswell Cancer Center and they were more hopeful of her prognosis. Went for the consultation where they briefly touched on everything. Towards the end they asked if the original tumor had been removed completely during the operation as the post surgery report didn't list that. We were all confused as to why it was not noted. They then did a scope of their own and noted small tumor growths and the scar from the large removal. They did not take a sample because her original slides should of been adequate for their pathology team. The two week mark came and we all went to the original dr. for the Sloan Kettering opinion. Waiting in the waiting room they come and tell us they didn't get the results back yet and to come back again in two week. (Anger) two weeks again come and this time they call us that the report was STILL not available. By now my mom is getting extremely angry. They again tell us they will call when they get everything back. Another week and we hear nothing. She now calls back and demands they find out what's happening because we are over a month out from her initial diagnosis. After a stern message to them they call back and tell us that Sloan doesn't accept her insurance and the sample was never looked at and have been SITTING there all this time. (FURIOUS) they said they would send the slides to Roswell. We go on a week vacation that we had planned. We are now home and her next appointment at Roswell is Thursday and they STILL don't have the slides. Calling all over today my mom has been told the slides were sent to them on the 29th. And then that they are still at Sloan. We are 2 months out from her diagnosis and we have zero idea the exact pathology and any treatments. What I'm asking is...

How fast can this progress because she is sitting here thinking she's probably stage 4 spread everywhere by now.

Or do we have any grounds to seek legal advice for a break down of care?

Thank you for anyone who read all that and has an opinion. We are beyond frustrated and feel like they are treating her like she came in for a common cold not a cancer diagnosis.

Posted Jul 7, 2026, 9:55 PM UTC

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