Ear/ smell and taste experiences.

Symptoms

Hey,

I was diagnosed with TN by my GP around 3 years ago, she advised that referral to neurology would not be needed as if carbamazepine worked for pain, then the diagnosis of TN was correct.

I currently take 800mg Carbamazepine and with this, I have experienced a significant reduction in attacks and on occasion where I experience attacks, they are less intense and don't last as long.

I feel my forehead, cheek & nose are most affected.

My question is, has anyone experienced sensations in their ear, crawling tickling type sensation? In the absence of TN attack.

Also, has anyone experienced smells that aren't present and/ or altered taste and things not tasting as they should.

Thank you!

Posted Jul 10, 2026, 7:22 PM UTC

11
Loading comments…