Stage change after radical hysterectomy. Follow up treatment questions
Hey all! I’m a 27F that was diagnosed with poorly differentiated squamous cell carcinoma (other High Risk HPV driven) in May. After my consultation, mri, and pet/ct scans, my gyn oncologist confirmed that my cervical mass (about 3cm) was contained to the cervix with no myometrial or parametrial invasion- and was very excited to tell me that it was curable.
About a week or two later I was given two choices: chemo radiation + brachytherapy OR surgery with a 20% chance of no follow up radiation). The board did not have a favorable direction they were leaning toward so with another choice to make, I favored the 20% outcome of not having to follow up with radiation and remove the source itself. About 3 weeks later I went in for a radical hysterectomy, exploratory laparotomy, bilateral salpingectomy, bilateral oophoropexy, and bilateral pelvic lymphadenectomy (I kept my ovaries and surgeon moved them up). 3 days prior to my surgery I went in for another MRI that confirmed the mass was contained and no para/myometrial involvement.
I am now 3wpo and feeling a lot better. Aside from the pathology results that came back… all pathways and lymph nodes were clear aside from a 2mm spot found on the left parametrium moving me from stage 1B2 to stage 2B: Parametrial involvement but not involving the pelvic sidewall. Even the doctors found it to be bizarre and I have yet to receive an explanation for how it got there in the first place (after multiple scans and pathology confirming pathways all clear).
I guess to make a long story short; while I will always prefer the more favorable outcome even if it has a lower chance and remain positive, I just wanted to see if there are others out there that have had a similar experience? I’m just really struggling with the waiting, false hope, and thinking about the short/long term effects of not only a hysterectomy but also radiation (or the possibility of chemoradiation). This has been super heavy and I find it hard to relate to my family (they’re were shocked more than I was and cancer is not something that runs in the family) so any guidance or experience would be much appreciated 🫶🏼
Posted Jul 11, 2026, 1:18 PM UTC