Pelvic pain

I’m researching the experience of people living with persistent pelvic pain and would really value your insight.
What was the hardest part of your journey?
Was it:
getting a diagnosis?
being listened to?
knowing what questions to ask at appointments?
understanding what happens after treatment or surgery?
finding the right specialist or next step?
What do you wish someone had explained to you earlier?
Thanks for sharing — I’m trying to understand the gaps people experience, not offer medical advice.