hEDS & MCAS: What has changed for you over the years?

Hi everyone! I’m 28 and was diagnosed with hEDS and MCAS two years ago after spending 26 years trying to figure out what was wrong.
I also have dysautonomia and several GI issues, so my biggest struggles are chronic pain, fatigue, brain fog, tachycardia, blood pressure swings, stomach issues, and frequent flares. I get weekly Lactated Ringer’s infusions through a port, and heat is one of my biggest triggers. I also have a bad habit of overdoing it on good days, which almost always leads to a flare.
I’m wondering what to expect as I get older. Has your hEDS or MCAS progressed over time? What has helped you with pacing, managing flares, or improving your quality of life? Any advice you wish you’d received early on?
I’d really appreciate hearing about your experiences. Thanks! 💜