Any teenagers who feel like their social life has been wrecked by Syringomyelia?

I'm 16 and got diagnosed about 6 months ago and started having severe symptoms about 2 years ago. I haven't had a neurosurgeon appointment yet but I have one soon. I'm in pain most days and it feels like some of my friends think I'm being dramatic or just don't understand what I have. I plan to hangout with my friends super often but I live quite far from most of them which leads me to have to get the train if I want to see a lot of my friends. I feel like such an asshole when I have to cancel hangouts at the last minute because I'm in too much pain or am too dizzy to feel like I can get the train safely. I don't know how I can explain to my friends more about my condition and it feels like some of my friends have started looking down on me since my diagnosis because I've started hanging out with them less and I've already lost a friendship because of it. Anyone know how to explain my condition better or who has the same problem?