r/cfs•
rachellesalmon

I there anything I can do?

Vent/Rant

I am so tired, no matter how much I sleep or how much I rest I never feel like i get any energy back. I get that is the crux of this illness hut im just so fed up. Last night while laying wide awake at 3am in one of my many awake periods during the night I started to worry that I will eventually have no energy to give. What do I do then? Surely my energy will run dry since I never feel like i gain any back.

I spoke to my mum about it and told her I've seen stories of people online who are bedridden. She said that those people gave up, that when i run out of energy I just have to still get up.

I then went into work and expressed these same thoughts to my employer who has fibromyalgia and me/cfs. I was surprised when she essentially said the same thing. That the people who are bedridden have just given up.

Im worried I will get to that point because each day I am more and more exhausted. I can barely find the energy to shower. I only work 2 days a week and still live at home with my parents because its the only thing I can afford. Im 29 years old. I feel weak, I have jo energy to do anything I enjoy because I have to save it all for my work days. What do I do? I find myself being so frustrated. Im normally a very happy, polite and easy going person but my patience has started to run thin, i find myself becoming more snappy, get frustrated with people in public. Is there anything to be done?

Posted Jul 30, 2026, 2:06 PM UTC

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