Pulmonary doctor update

Update

I just got out of my pulmonary appointment. I have a new pulmonary doctor as my original doctor has now retired. I asked if he agreed with my previous doctor's assessment that I have Cardiomyopathy due to COVID. He does not. The reason is that I've had three right heart cath, a cardiac MRI, three echos, a V/Q scan, pulmonary lung function test, and a cardiopulmonary exercise test which shows a heart that has trouble relaxing, not a weak heart that is typical of COVID. He is pulling exactly what my neurologist attending did months ago that my symptoms can be explained by other health issues.

A night and day difference exists between pre-COVID and post-COVID self. I don't feel any better after 270 days of successful CPAP therapy. The goalpost keeps changing. Address this. Now address this. Now address this too. All while I continue to have symptoms that significantly impact my personal life and my ability to work. All while I'm on the verge of homelessness and have been for years. All while my life is figuratively on fire. Right now, figurative gasoline has been poured on the fire and I don't expect it to get better anytime soon.

Exercised induced pulmonary hypertension and HFpEF don't explain my cognitive dysfunction and/or physical dysfunction which is what I largely focus on. Sleep Medicine doesn't think that Sleep Apnea is the primary root of my problems because I should have some improvement by now. My follow-up is in a year.

Towards the end of August I have an appointment with the Medical Director for PCP who used to work closely with the Long COVID Clinic before it was closed. Maybe that will be more promising.

I don't even know what to do anymore. My cognitive dysfunction and physical dysfunction impact my ability to work and therefore keep a roof over my head andt focus is in addressing that. I'll be dead long before HFpEF kills me at this current rate. I'm not suicidal, it's just a logical and rationale chain of events once housings is no longer stable.

Posted Jul 30, 2026, 2:10 PM UTC

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