r/SSDI_SSI•
EZLinus

Need Opinions of Artists with Disabilities

Benefits (Conditional)

Hi everyone, I'm 58 and have been on SSI Disability for 27 years. Before I went on SSI, I was a professional visual artist. I never had any formal education, but I built a long-term career from the ground up. Though I don't make much money, I've continued to be an exhibiting artist. A few years ago, my partner and caregiver set up a 1st-person special needs trust for me. Ever since, my local SSA office has been harassing me, using every amount I put in and take out of the trust as overpayments to them. I had to get a lawyer who is now helping and challenging their reasoning since there is no way I could ever pay back many thousands of dollars to Social Security. My SSI payments are already lowered quite a bit because they take a percentage out. All this has made me consider how I can get away from SSI altogether. I'm disabled both physically and mentally, so if I start working, I don't even know if I could cope. But I had an idea to work for myself as an artist's mentor, specifically for artists with disabilities. I've started going to community college part-time and am working on a degree in sociology. I'm taking public speaking and learning ASL, etc. I figure, if I could get private clients, I could mentor them over Zoom for a small hourly fee. I don't need to make a ton of money to replace my SSI payments, and I can get on the Medicaid 1619(b) so I can keep my health benefits while being self-employed. I can set up an Able account, too. I started getting very excited about providing this service to artists with disabilities because I love helping others and I truly have loads of knowledge in this area. I was feeling very optimistic until I showed an artist friend of mine the mock-up of what my business would look like. She seemed to think that I wouldn't really get any clients because "people with disabilities don't have enough money to pay $100 an hour." Most art mentors and coaches charge over $250 an hour, but I would be catering specifically to artists who are navigating major barriers in addition to starting out an art career from scratch. Even my artist friend pays an art coach $225 an hour, which is why I asked her opinion in the first place. She also said trying to find clients would be too hard and would require so much promotion that I may not be able to do it all by myself. Now I'm feeling defeated about starting my own business, getting off SSI, and just living a free life again. Should I give up on this dream, or push through and try to make a go of it? Would it be too exhausting, or would I be just another fish in a big pond of art mentors and coaches in an already saturated market? Your opinions matter to me.

Posted Aug 3, 2026, 2:00 PM UTC

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