Don't know what to think

Couple of things here. I've been told I just "had a PE with about 4 inches of lung death" for two years now. My previous hematologist kept saying that it was unprovoked, but I told her I let someone move my estrogen with supplements that shouldn't have. (We kept testing, my estrogen was 100% moved over months) I had no idea that when you mess with estrogen and testosterone your risk increases a good bit. But because she thinks suppliments can't do that and she doesn't understand them, I was just ignored. Factor 5 and 7 negative but my chart online says I have prothrombin gene mutation?? My dad that also had a DVT provoked. They said it's because he worked for 35 years straight, standing on concrete in a plant for 12 hours a day and then retired and wasn't as active. Don't know if he has factor 5 or 7.

Fast forward a month ago, I wanted a second opinion. Got in to see a highly reviewed Hematologist and he agrees that it was provoked. I've been on 10mg xarelto after the 6 months of 20 mg following my PE. He tells me I actually had a bilateral PE which to me is way worse than "just a pe" but he said he thinks that as long as I stay moving he's fine with me going off the thinner.

The thinner made me almost anemic from periods and passing clots as big as my palm. I'm on a progesterone cream which is helping, but my iron deficiency is feeling insurmountable. Ferritin is a 6. I have Celiac disease and seem to be allergic to the iron infusion they game me so far.

Sorry for such a huge post, but want to give you all info that I have. The decision to stop taking the thinners or stay on them even though they feel like they are k!lling me has plagued me for over a year.

Would you get off them if you were me?

Also, does anyone that had this have their chest hurt if they get acid reflux? I've had an echocardiagram, 30 day heart monitor, and stress test and say nothing is wrong with my heart.