Symptomatic with positive PTau 127

I’m a 61 yo female medically retired RN for 5 years now due to contracting Covid which turned into long Covid . Prior to this I had been diagnosed with lupus many years prior and dealt with “lupus fog “since Covid. I have been dealing with a multitude of medical issues. One being my cognition. I’ve had over the years three neuropsych eval‘s are with deficits and the last one being last year. i’ve been telling my neurologist and PCP for the last at least two years I feel that my cognitive state has declined my father who has had increasing cognitive issues over the years is now been officially diagnosed with Alzheimer’s. I made the neurologist aware of this and she ordered this test, which came back yesterday. my result was .497. She has offered to order the specific PET scan and then referring me to “a memory clinic “I started researching this and reading post on here and just trying to gather whatever information I can. I live in rule area in New York. There are some larger medical centers that do have some specialist in this field, which are two hours away from me. I just wanted to reach out and I guess ask people who are going through this what they feel are important things for me to advocate for and should I be looking farther away such as the Mayo Clinic. Even with all of my medical problems, this is what I’ve always feared the most. Had a grandparent who had undiagnosed/untreated form of dementia because back in that time there was no talk of it. I appreciate so much all of you sharing your stories and your information, it truly is so helpful. My closest friend, my mother who also was a nurse passed away in February and I’m feeling very alone.