Just got diagnosed - feeling freaked out

Hey everyone, after a few months of tests and then my colonoscopy on Monday, I was diagnosed with Crohn’s disease. I would say this year I have had a lot of stress, fatigue, blood in stool, mild stomach pains so I was under the impression that I have “mild” Crohn’s.

Even after my colonoscopy I believe my doctor said that my Crohn’s was mild and he is starting me on tremfya. However, he took a biopsy and I got the results back on Wednesday that kind of stated the opposite. Here were my results:

A. TERMINAL ILEUM, BIOPSY -
SEVERE CHRONIC ACTIVE ILEITIS (VILLOUS BLUNTING, CRYPTITIS, ULCERATIVE DEBRIS).
NO DYSPLASIA.

B. COLON, RIGHT / ASCENDING, BIOPSY -
MODERATE TO SEVERE CHRONIC ACTIVE
COLITIS (CRYPTITIS, FOCAL CRYPT ABSCESS, FOCAL CRYPT RUPTURE /
DAMAGE, ULCERATIVE DEBRIS).
NO DYSPLASIA.

All that being said, his office said that this confirms that I have Crohn’s (obvi) and this is why the doc is starting me on tremfya right away.

I kind of felt like I def have something going on but if it is Crohn’s that it would be mild since my symptoms aren’t life altering. Now that I’m seeing my biopsies are severe I’m freaking out like does that mean my Crohn’s is severe or just the biopsies that were taken are severe. Maybe I shouldn’t even be worried about the labels for this but I just don’t know what this means for me.

Idk let me know your thoughts or if you have similar biopsies or “severe” findings. Also interested to know any detail you can provide about tremfya or just in general Crohn’s life advice.

Posted Aug 13, 2026, 4:12 PM UTC

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