r/MCAS•
sharmander12

Tell me your GLP-1 experiences

I (26F) have the MCAS, POTS, hEDS trifecta. I’ve been seeing a lot recently about GLP-1s being used for treatment of all 3 of these. I have just started my MCAS journey (diagnosed & treated in April) and my POTS has been in a significant flare for the last several months. I am seeing a POTS specialist on Tuesday and have an appointment with the Mayo Clinic’s EDS clinic in early September, and I would like to talk with them about GLP-1s. Before I did that, I wanted to ask for your experiences with GLP-1s, both positive and negative, and if there’s anything to keep in mind. FWIW, my husband and I plan to start a family in a year or two, I am on continuous birth control for suspected endometriosis currently.
So, what are your experiences with GLP-1s? Bonus points if you can give some insight on GLP-1s and what that means for family planning. TIA!

Posted Aug 31, 2026, 2:19 AM UTC · locked

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