Bulbar worries

I’m a 26M and have been stuck in an ALS hole for about 3 months now. So bad I’ve even begun seeing a therapist for my health anxiety but the symptoms just align so much I can’t help but think I almost certainly have ALS.

It started with a twitch in my right thigh that shortly after spread body wide. It has been everywhere and everyday since middle of June and it gets worse when I stretch in the morning. I saw a neurologist who tested my strength and reflexes and he said everything is fine and ordered a NFL and CK blood test which came back fine.

But I have now noticed I’ve had weird swallowing and mucus issues for quite a while and am worrying that it’s been bulbar onset all this time. I do have Acid reflux but some of the things I have are
- food and liquid going slowly down throat
-feels like throat is tight at bottom of throat when food and liquids are going down like the throat doesn’t open up or muscles don’t work
- Constant mucus / post nasal drip
- and now I don’t know if it’s in my head but it feels like water gets in the back of nose top of throat when I swallow

I don’t have any speech problems or anything and idk if my voice gets hoarse cause of mucus or bc the anxiety dries my throat.

I feel like everything is adding up now and I have an EMG scheduled for December and I don’t know if I can wait that long.

Posted Sep 2, 2026, 12:42 PM UTC

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